Saturday, August 25, 2012

In the world of a child with Spina Bifida

Last night before bed Joshua and I were laying on the family bed reading books.  He wanted to read to me.  All of his stories included people who couldn't stand up.  He would read "And the Mommy is sick, she can't stand up."  or  "The baby deers can't stand up they only crawl."  The only thing that is on that little guys' mind right now is standing up.

My husbands aunt read my blog and read about how Joshua wants to stand up.  She sent me a message that she knows a woman that has a stander-worth thousands of dollars-that they are not using and are willing to give it to us!  When I told Joshua this his whole face lit up!  he shrieked with excitement!

Though this stander is likely to be used only a little bit each day, the moments that Joshua is in it are going to mean so much to him!  Josh already has ideas on modifying it {slightly} to make it go!  We plan on getting it next week sometime!  God is so good!

Remember this as you clean this weekend.  You may have something in your house that you are hoarding :) that could bless someone else right now!  I have used this as a lesson as I learn to purge and not hold on to items forever for the sake of losing a memory.  I once read an article that tossed around the idea that our weaknesses are a result of something big that has happened to us in our life.  I tend to be a pack-rat.  I have such a hard time getting rid of things as I remember every little thing about it.  I get emotionally attached to things as simple as a purse.  Though I haven't used the purse in 2 or 3 years, I cannot get rid of it because I remember the shopping trip when I bought it.  I remember using it at a special occasion.  It's ridiculous!  I am learning to let go little by little because in the end when I am rid of clutter I am happier!

My parents divorced when I was 5 and I think that has molded me into the person I am [the good and the bad] just like all life events do.  I hold onto things for a fear that it will be gone forever.  The idea of family has been gone for a long time within my immediate family.  I can't tell you the last time that my Dad, Mom, brother and I were together for the sake of choosing to spend the day as a family and enjoying it.  I must have been 5 and unfortunately, I do not remember a lot about that.  I dream what it would be like for my brother and I to "go home" in the house that we grew up in.  Mom and Dad be sitting there together excited to have us home.

For those of you who are all one family still today wether you are an old family or a new one, embrace it.  I hope you can see the blessing!  I am embracing the blessing I have every day with my husband and our three children.  I love my family and it's what I live for.

I love this song:

http://www.youtube.com/watch?v=_G5HoBtdLzE

I hope this move isn't too hard on the kids.  One thing about starting your family when you are so young is you start out with nothing.  The darling cottage down a long lane that I dream about raising our children at isn't here yet.  The house the I have brought my babies home from the hospital to are not mine.  I can't have them forever.  Hopefully, someday I can pull in the drive way and just sit and reminisce.

Not sure why this was on my heart today-I promise I am not a basket case.  Well, who am I kidding, lol.  I think I am a little nuts.  But that's ok.

My wonderful husband just brought me coffee and a doughnut.

good-bye!

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